Miscarriage

Stephanie’s Story

For 2023, I thought and prayed about what my “one word” would be for weeks. The word that was continuously on my mind was “heal.” Healing emotionally, spiritually, and mentally. For me, part of healing includes writing my story and acknowledging the trauma that I have endured.

In April of 2017, I received my first positive pregnancy test. I had waited and waited until two days before my period was due to take my test. I woke up at 4am because I was so full of nerves and just needed to know. I remember watching the tracker on the Clearblue digital test as they slowly, slowly, slowly blinked on and to my shock, the word “pregnant” showed up and I was so excited.

This pregnancy was picture perfect. Great HCG rise and strong progesterone increase from the start. Before my 8 weekappointment, I remember just breaking down in tears from worry about whether or not we would hear a heartbeat at our appointment and thinking how would I ever survive a miscarriage. Thankfully, when we got to our 8-week appointment, we heard a strong heartbeat and I immediately broke into tears.

Fast forward to January 2018, when I was 39 + 6, and I was induced (by my choice) and my sweet 8 pound, 8 ounce baby girl, AG arrived with a great delivery. Now that I know her personality, there was nothing stopping her from taking this world by storm!

After she was born, I went back to my regular birth control that I had been taking before we tried to get pregnant with Annalee. All was going according to plan until November 2020. I was late. On birth control, I was never late! My husband thought I was losing my mind, when I told him I was going to take a pregnancy test. To be honest, I thought I was a little crazy too. I remember going after work, getting a test and taking it right away. Again, the slow blink…pregnant. On birth control.

Panic set in. We were not planning on getting pregnant. We had a strong willed almost three-year-old, how could we do this? We were at war with ourselves. Obviously, we were going to love this baby no matter what, but how could we manage it all?! This wasn’t what we had planned. I went in for my routine blood work. HCG rose normally, but my progesterone took a nose dive. I knew this wasn’t how my levels were with AG and in my gut. I started taking progesterone supplements and had my next blood draw, my levels had increased. I began to feel cautiously optimistic, but my anxiety was off the charts. We started formulating a plan to surprise our parents with a Christmas announcement!

At about 6 weeks pregnant, I started spotting. I called my doctor and they suggested increasing my progesterone dosage. I began doing that, and the bleeding stopped. In my heart, though, I knew what was happening. At 8 weeks, we went for our first ultrasound. My husband drove and I cried in the car the whole way to the appointment while listening to “Thy Will” by Hillary Scott. The wait felt like forever to be called back for the ultrasound. The ultrasound tech put the wand on my stomach and we watched and waited. The silence was deafening. Our baby, our Little Bean, had no heartbeat.

After the hardest moment of our lives, we were sent to the waiting room to wait to see my doctor-where I sat with visibly expecting mothers. (This is a part of maternal care that needs to change! Mothers experiencing loss, should have a separate waiting area.) Because of how early I was, we had to wait another week to see if Little Bean’s timeline was off. The only way to describe this wait is excruciating. Instead of telling our parents that we were expecting, we had to tell them we were miscarrying instead. We went back the following week, and there was no progress. It was then that I was given the option to let things progress naturally or a D & C. I opted for a D & C because it was only a few days before Christmas and I did not want to taint Christmas for my daughter in any way.

So, 3 days before Christmas, my D & C was completed. Because of COVID, I was completely alone. My husband was only able to drop off and pick up. This just personified to me how lonely I felt in this moment.

One of the hardest things that I have done is to grieve one child, while still trying to muster the strength to parent my living child. Because this wasn’t our plan, emotions were all over the place. We had gone from panic, to acceptance, to excitement, then to gut-wrenching heartbreak and grief.

Looking back, I realize that to process my grief, I focused my energy into trying to get pregnant again and three months later, I was pregnant again! From the start, I was hopeful, Google told me that back-to-back miscarriages were rare. I went in for routine blood work again. First draw looked great! When my second blood work came in, I was shattered. My HCG more than doubled, but my progesterone once again, dropped. How could this be happening again? Thankfully, my doctor scheduled me an early ultrasound at 6 weeks so that I did not have to wait until 8 weeks. Again, the wait…gel, wand…and silence. It was like déjà vu. Because of how far along I was, we had to wait to confirm that it was another loss. A week later, there was no progress, and I opted for my second D & C.

After the second D & C, my primary care physician reached out to me. Because of the computer systems used for charting by the hospital and physician’s office, he was able to see my records. I will forever be grateful for his proactiveness and encouragement for running blood work! He had his nurse call and start the process and I was able to get in for any appointment in two weeks to begin bloodwork. At this point, I was grateful that I felt something was in my control again. All my bloodwork came back normal, but his proactiveness encouraged me to reach out to my OB for more fertility specific bloodwork. Upon completing the bloodwork with my OB, I was diagnosed with MTHFR. This diagnosis is controversial in the fertility world of whether or not it actually contributes to miscarriages or not, but the treatment for it is simple – a daily aspirin.

Fast forward five months post D & C, in October I found out I was pregnant again! This time, there was cautious hope. The chance of three consecutive miscarriages, according to Google, is 1%. Routine bloodwork gets completed. First round looks great! Second round, HCG drops. I was completely broken and hopeless. I opted to miscarry naturally this time. No one prepares you for the moment of passing your baby and the feeling of emptiness that comes instantly. Three babies gone. At this time, I asked my OB to refer me to a fertility specialist.

During our first appointment, she threw the “kitchen sink” at me. I began taking several vitamins and iron supplements to see what happened. 

January 2022, our pastor preached on Romans 12: 12, “Be joyful in hope, be patient in tribulation, be constant in prayer.”

January 2022, the test reads pregnant. I remember going to tell my husband the news – with zero excitement. Not because we didn’t want this baby, but because we were so numb to hope at this point. At the fertility clinic, they only tracked the HCG because I started progesterone supplements at the positive test. HCG rose quickly! Now the wait begins…

Every single day, we prayed for this baby. This baby was covered in prayer by so many people.

On February 10, 2022, we went for our first scan. I had accepted that we would once again hear silence.

BUT GOD

After seconds that felt like hours, we heard our baby’s strong heartbeat. I will never forget that sound. After the doctor left the room, I lost it.

Pregnancy after loss is complicated. Even when you have good news, anxiety creeps in every day. My fertility doctor, thankfully, understood this and allowed me to come in for a scan every week until 10 weeks. Then, she lovingly weaned me from weekly scans because she knew that I was going to have to be on regular doctor appointment schedules when I was transferred back to my OB. There was not a day during this pregnancy that I did not worry. 

At my 36 week scan, baby was already estimated to be nearly 9 pounds. At my 38 week scan, baby was estimated to be almost 10 pounds! Due to baby’s size, I opted to schedule a c-section. However, baby had other plans. At exactly 39 weeks, my water broke, on a Sunday where I had no idea what doctor would be there. BUT GOD. Once I checked in, I asked the nurse who the doctor on call is – my doctor! Because of when I had eaten lunch and how fast I was progressing, I was unable to proceed with a c-section. When my doctor’s shift ended, the director of OB care came on shift. Together, they arranged for an additional team of nurses to be in there due to baby’s anticipated large size.

After 14 minutes of pushing, our sweet baby boy, RG, was born…weighing in at 11 lbs 5 oz! His size did bring some minor complications for both us, but after about 30 minutes, my baby was FINALLY in my arms.

Stephanie G.
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Miscarriage

Nicole’s Story

I first got pregnant the year I got married. We weren’t even trying, but were overjoyed. At our first ultrasound we learned our baby didn’t have a heartbeat. A missed miscarriage. I didn’t know that was possible. 

A few months later, I was pregnant again. At my first ultrasound we learned it was a blighted ovum. There was no baby. The OBGYN told us they were both likely just bad luck and I was likely to go on to have a healthy pregnancy.

Then, I got pregnant again. Again we weren’t “trying” to conceive, just open to it. This time at my first ultrasound there was a heartbeat! I was overjoyed! Finally, this was the one. Our next ultrasound at 18 weeks there was no heartbeat. We were crushed.

About a year later, I was late for my period. I was too scared to take a test. I ended up bleeding after a few weeks and I feel sure that it was an early miscarriage. All my emotions from before rushed to the surface.

Fast forward three years. I finally feel ready to entertain the idea of trying again (I’m not getting any younger). I get pregnant right away, I’m SO SICK for a whole summer with morning sickness. I think surely this is a sign that my hormones are raging and this is a strong pregnancy. We go in at 16 weeks and hear our baby’s heart beat. “That’s a big baby!” the midwife says. We go back at 20 weeks and there’s no heartbeat. The longest I’ve made it in a pregnancy. I feel numb. I had my registry filled up, I had a baby shower date planned. I had allowed myself to hope. And now I was 36, carrying a dead baby around in my womb, feeling like everything was slipping away. 

It’s not even a year later now. I have had lots of blood work done and different tests and everything seems to be fine. 40 feels dangerously close and I’m no closer to knowing what is to come than I’ve ever been. I’ve learned to trust God with my hopes and my fears, constantly giving them back to him when they come creeping up in my heart. People my age and people younger than me are all having babies around me and sometimes it feels lonely. But God has been so faithful to give me people who have walked this journey or are walking it now to give me a compassionate and understanding word, always when I seem to need it most.

This is my story. 5 pregnancies, no living children, but full of gratitude for the many blessings that have come to me along the way.

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Stillbirth

Blaire’s Story

Nora

Our first daughter was born in October of 2016. I naively thought that it took “forever” to get pregnant with her, it took 3 months (insert eye roll here). It was a very uneventful pregnancy that ended with a somewhat eventful delivery. My water broke at 36 weeks and 6 days and our beautiful daughter made her Halloween debut. Fast forward through postpartum depression, moving 12 hours away from our support system, the death of close family members, and 2 years later, we decide we are ready to try for a second child. This is where our long journey to Nora begins.

In early 2019, I got pregnant and then went through a missed miscarriage. I got positive tests, faint ones, but still positive. My period was over a week late so I made an appointment with my doctor for the first ultrasound. About a week or so after that I started having bad back cramps that my doctors office dismissed as just normal pregnancy pains. The next day, I started bleeding heavily and ended up in the emergency room where I was told my HCG levels were very low and they could not find anything on the ultrasound. This was my first experience with the world of miscarriages and it was devastating. To make matters worse, when I followed up with the OB/GYN I was seeing at the time, she told me that no one really looks into the cause of miscarriages until you have had three. 

In 2020, I had my second and third miscarriages – these were also early. I made an appointment with my OB/GYN to discuss the fact that it had taken quite a while to get pregnant again and I had just had 2 more miscarriages. I was 33 at that point and worried that my age may be playing a part in everything. At that appointment, I expressed my concerns and was thankfully taken seriously by my doctor. She ran as many tests as she was able to and then referred me to a fertility specialist when all of her tests came back with no answers.

Through fertility testing, we were diagnosed with secondary infertility. What a frustrating world to be in. You’re told that you should feel lucky that you have one child at least, and everything happens for a reason. I hate that phrase. Yes, I am so lucky to have my daughter, but I also feel like my family isn’t complete yet, and would love to give her a sibling

Our fertility doctor suggested we try IUI and was pretty confident that we would get pregnant that way. We did three medicated rounds and finally got pregnant. I went in and got it confirmed via a blood test on a Thursday and was told to come back Monday to make sure my HCG levels were rising. By Saturday, I was not getting positive digital tests (yes, I continued testing at home, because I was paranoid it wasn’t going to stick) and by Sunday, I was bleeding. Monday’s blood test confirmed my fourth miscarriage. It had been 2-2 ½ years of trying and the miscarriages were just taking a toll on me mentally. I told my husband that if our next round did not work, I didn’t know if I could keep going. 

Round 4 of IUI was next and what do you know, it worked. I got a positive test about 4 days early and the lines just kept getting darker, I couldn’t believe it. We went in at 6 weeks to get our first ultrasound and saw baby’s heartbeat. I still couldn’t believe it. We also found out I had a small hematoma and I was put on pelvic rest until the next week when they would scan again. At week 7 the hematoma was gone and you could see the little heartbeat fluttering strong. I was released to my regular OB/GYN and scheduled my first appointment with them. We were so excited and started telling our family and close friends when we were about 8 or 9 weeks along. 

Blaire Graniero

I cautiously started to plan for baby’s arrival, we had a due date of February 11th 2022. I still couldn’t believe I was pregnant! I wouldn’t let myself get too excited though, because I was scared it was all going to end. We found out baby was a little girl and started thinking of names. My husband and daughter were so very excited. Then, I started spotting around 11 or 12 weeks. I thought for sure it was the end. I went into the office for another scan to see what was going on. Come to find out, I had another hematoma and was put on pelvic rest again. When I went back for a follow up ultrasound at 15 weeks, we were told it was gone. I was relieved and let myself finally get excited about baby girl. We started getting out all of our baby stuff and set up the room for her, I got the registry going, and we started narrowing down names and finally landed on Nora Blake. Everything felt right.

Blaire Graniero

My next appointment was for our anatomy scan at 19.5 weeks. Covid was ramping up again and my doctors office changed their policy about who was able to come into the office. Children were no longer allowed, and on that particular day we unfortunately didn’t have anyone to watch our daughter, so my husband wasn’t able to go. I was nervous for some reason, but everyone assured me that everything was fine and it was just my anxiety. But deep down I just couldn’t shake the feeling that something was wrong. 

During my scan I noticed that Nora wasn’t moving around all that much, but she had a strong heartbeat so all was fine. I told myself there was no reason to be anxious. Then the ultrasound tech started scanning her heart and kept scanning her heart. I tried to not pay attention to it too much and asked her if I had an anterior placenta because I wasn’t able to feel her move much. She responded that she would answer that in just a minute because she needed to keep checking for something really quick. She then told me that there didn’t seem to be a lot of amniotic fluid and she was having trouble taking some measurements, she needed to go get the doctor to double check.

Cue instant fear and tears. I was so scared in that moment, and alone. The few minutes that she was gone felt so long. Finally, my nurse practitioner came in and looked at everything. When we went back to the room I called my husband in tears and told him that something was wrong, I didn’t know what yet, but something. When she came back in the room she explained to us that there was not much amniotic fluid, there may be a hole in her heart, they can’t find her bladder and she’s also measuring two weeks behind. She was going to refer us to the high risk OB group and her nurse would try to get us in as soon as possible.

We were able to get in two days later and were met with the absolute worst news. Anatomically, Nora appeared to be fine, but there was no measurable amniotic fluid and she was incredibly small. We were told that she most likely would not survive because at that point I was only 19 weeks and a few days. We could terminate the pregnancy or continue to be monitored weekly to see if there was any improvement. We chose the latter. At that point our doctor’s best guess was placental insufficiency, she just wasn’t getting what she needed to grow, and unfortunately, there was nothing anyone could do.

Every week, we made the 45 minute drive to see our doctor and get another set of scans. Every week Nora was alive, but with little to no improvement. Every week we didn’t know if we should be hopeful or not. Every week we left our appointment with so many more questions. But every week was one more week with her, so we tried to enjoy it as much as we could. 

At one point, around 22ish weeks, we started talking about the possibility of her maybe being able to survive and receive medical intervention if I went into labor, but only if she had finally grown. Unfortunately, the scans showed that wasn’t the case. And then doppler scans of her umbilical cord and liver started showing signs of reversal. We were told we probably had a couple of days left. Nora had other plans though because she held on another week.

At 23 weeks we went in and were surprised to see her still alive. That probably sounds awful to say, but we were truly shocked when we would go in each week and she would have a heartbeat. At that appointment, her dopplers showed a complete reversal of blood flow. She was not getting anything at that point and her heartbeat was starting to slow. We made an appointment to come in the next Monday rather than Wednesday to check and see what was going on. Our daughter’s fifth birthday was quickly approaching, so we wanted to know what was going on before that.

On Monday, we went to our appointment and during my triage with the nurse, we discovered my blood pressure was high. I thought it was probably because we were anticipating Nora not having a heartbeat and all the stress of the last few weeks catching up to me. She had me sit for a few minutes and checked again; it still had not gone down. Our doctor was worried that I may be starting to have preeclampsia and told us that it was time to be induced. I was 24 weeks now. We checked into the hospital at 10:00 that night and I was started on Cytotec around midnight.

At 9:52 am on October 26th, Nora was born. She unfortunately did not survive labor though. She was so small, but she was a little person. She had a head full of hair already and looked just like her older sister. Immediately after delivery, I was started on medication for preeclampsia. Then we got to hold Nora for as long as we wanted. The hospital staff were so kind. They brought us a memory box that had a small blanket, some hats, an angel gown, a tiny cloth diaper and a few other things. They also took pictures of her, got her handprints and footprints, and allowed us as much time with her as we needed. 

On the 27th, I was discharged. I thought everything up until that point was difficult, but boy was I wrong. I had to finally face the reality that I was leaving the hospital without my daughter. I had to be wheeled past all of the postpartum rooms, and then on the way out of the hospital going to the parking deck I passed a new mom and dad getting a picture taken with the newborn. It was a punch to the gut. I had a 45 minute drive to get it all out of my system and pull myself together enough to go home and then tell my almost 5 year old that her baby sister was no longer alive. 

The next few weeks were incredibly difficult as I navigated still being a mom to a living child, having preeclampsia and constantly monitoring my blood pressure, and dealing with typical postpartum issues. We still had no answers after those first few weeks. The physical exam of the placenta only revealed that it was small and it showed some calcification, but nothing major, and Nora’s autopsy revealed that while she was very small, she was perfect in every other way. I started going back to see a therapist and trying to work through the fact that I may not have an answer to why everything happened and how to move forward. 

A few days before Christmas, we finally got an answer. The pathology report on my placenta finally came back and it revealed that I have something called Massive Perivillous Fibrin Deposition. The very basic explanation is that there was a bunch of “gunk” around the villi on my placenta and it prevents blood flow. It is an extremely rare condition and there is very little known about it. It appears that it may have a pretty high recurrence rate and there is no known cure to prevent it from happening. I am glad to have an answer, and to know that I truly did nothing to cause this. It is a scary answer though, and we do not know what things will look like moving forward, but for now it can help us get a little bit of closure. What I do know right now is that we are a family of four, and even though Nora is not physically with us, she will always be known and have a presence in our lives. We hope to be able to share her story with other families so they know they aren’t alone, because a journey like this definitely feels isolating and lonely. 

Professional photos courtesy of 84W Photography.

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