Coping With Loss

Cheers to One Year

As I look at this list of babies gone too soon, I can’t help but be overwhelmed with how far this account has come in just one year.

I started this blog in honor of our son, Anthony, that we lost at 10 weeks and 5 days in January of 2020. Once our healing journey began after our miscarriage, my husband and I were out to lunch. I shared with him that I started writing down every detail of our experience so I wouldn’t forget it. He replied “that’s awesome. You’re great at writing and I bet it felt good to get it out on paper.” I thanked him, agreed that it was cathartic and then paused before I said:

“I don’t know why, but I have a feeling I’m going to need this someday. I have this feeling this experience, his life, our story, needs to be shared beyond just our loved ones.”

I think this was it.

It has been such an honor to share the stories of your babies for the past year. Whether they were on this earth for weeks, months, or even made it earth-side but were born sleeping; your babies matter. They matter to you, and they matter to me. The strength, courage, kindness and support you have shown inspires me everyday. It is truly a privilege to be in this community alongside each and every one of you.


I asked some of my followers to share their baby’s names to be honored on the blog. Names put directly next to each other are siblings.

We remember…

Arthur

Vanity

Hazel

Alexandra “Lexi” Grace

Everett

Yonatan

Leif

Emily

Finley and Collins

Bear

Peanut

Abigail Rose

Stella Lee

Bryce Connor

Luca & Shiloh

Josie Mae

Harvey Thomas Comfort

Carter James

Madeline Faith

Liam Rodriguez

Claire Rebekah Rose

Ríonnach

Eli King

Avery Hope Ward

Dawn and Beau

Theodore Joseph

Palmer Knox

Parker Lane

Lennox Jace

Baby S

Riley

Josie Rae

Bri + Briar

Dakota + Posie Doering

Emma

Martina

Maverick

Hoja

Jedah Rhodes

Elizabeth Ann Killion

Bear Rozance

Ione and Elara

Ava and August

Parker

Colin

Magnolia Bea, Holland Blair, Hannah Brooke

Evelyn Barbara

Michelina Mary

Rory

Beauford

Nugget

Quinn, Peyton, Riley and Bryn

Blueberry

Isaiah

Asher Frank

Rafael

Faith Davita Rose Renner

Blueberry Flores Ramirez

Brooks & Bryce

Luca Harlow Rain and Shiloh Eden Rain

Luciana

Milo Anthony

Kofi

Milo James Coe

Joie Grace

Sarvin Bhalru

Micah

Anthony.

“I carried you for every second of your life, and I will love you for every second of mine.”

~Unknown

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Miscarriage

Jessica’s Story

Emily

It’s so strange how one moment you’re happy and the next your world is shattering into a million little pieces.

In January 2022, we found out we were expecting. We were so happy and told close friends and family about the bundle of joy coming. On February 11, I went to the bathroom and saw blood. I immediately started crying and calling my husband to figure out what to do. We went to the ER where we got to see our little baby and told that we had a threatened miscarriage. We went home feeling so scared and confused. On February 13 as we were leaving Target, I felt something leave my body. I looked at my husband to get us home now – we raced home and I went to the bathroom where a flood of blood came out. Our sweet little baby left us and went home to be with Jesus.

It was a crazy couple of weeks – various doctors appointments, my blood getting drawn all the time to make sure my body did it correctly, all the emotions and pain that come along with miscarriage. People’s faces that look on you with sadness as you tell them awful news instead of joy.

God sent a dream the night before that I gave birth to a sweet little girl with eyes that match my husband. The night that our miscarriage was confirmed we sat, prayed, cried and the name Emily was brought to us. We are mourning the loss of our little girl who was wanted so much. But in the midst of this we have seen God move – we had food dropped off, all the chai tea my body could contain, our bathrooms deep cleaned by a friend who knew that they were a place of shame for me. People sent flowers – I found it beautiful that each of them had lilies were closed and then opened up very slowly – like as I was grieving they were blooming, showing me that I don’t have to rush grief.

In March, I got a letter from my insurance company telling me congratulations for being a new mom and to sign up for their program. I was so mad at that piece of paper – I called my insurance, got a very cheery lady who was probably ready to sign me up when I told her in the most monotone voice I have ever made in my life – “no I don’t want to sign up. I had a miscarriage and I lost my baby.” This lady started crying and crying. I was trying to console her and just letting her know that I didn’t want to be on the list anymore. She said she would.

Right before Mother’s Day I got the same paper again.

Now I was pissed. I see now why mama bears get so mad when you touch their cubs. I called them again and told them “no, I don’t want to sign up. I had a miscarriage and I lost my baby.” The phone suddenly went very quiet. The first person I talked to said that there was no way to take my name of the list. I told them that I wanted to speak to their manager because that is BS that you can’t take my name of a list that I didn’t ask to be on. They transferred me to another person who said yes she could take my name off the list. Ever since that phone call I haven’t seen that damn piece of paper show up at my mailbox.

Every time I get my period, I get brought back to that cold February day. I now freak myself out by telling myself that any random symptoms could be pregnancy, only to get my hopes dashed by the awful blood that I get to see instead.

We are now trying again but it still so scary. My husband and I were talking about it and we both know we are scared for the next time. My miscarriage took away my innocence about pregnancy, but brought me so much strength.

I’m so sorry for every woman who this has to go through this. I wish I could take away the pain, I really wish I could. Thankfully, being a loss mom has made me connect with so many others. I can’t wait until I go to heaven and get to meet my little girl who was gone way too soon.

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Miscarriage

Colleen’s Story

Quinn, Peyton, Riley and Bryn

“Recurrent pregnancy loss.” A term I was unlucky enough to have attached to me over the past year. Four babies gone, in ten long months.  

PART 1

May 2020, my sweet baby Emmelyn made me a Mama.  Much to our surprise, we were lucky enough to conceive on the first try.  We couldn’t believe it when I took that first pregnancy test and saw the faint line (let’s be real, I started testing at 7DPO).  We were so excited, and so shocked at once.  My morning sickness kicked in very early around 5 weeks and I was sick multiple times a day – but it was all worth it, knowing what the reward would be a few months down the road.  Nine weeks rolled around and I was participating in an after-hours event at work, when I went to the bathroom, felt a sharp pain and had my first experience with bright red blood.  This would later become an expected event for me, a feeling all too familiar.  I hysterically called my husband and rushed home.  We rushed to the emergency room, where we were quickly encouraged us to just go home due to me being only 9 weeks along – “there isn’t anything we can do to save the baby if you’re having a miscarriage.” We then tried urgent care, where we were told they couldn’t treat me because I was pregnant.  I got back on the phone with the after-hours line at my OB’s office, to speak with the most heartless nurse who told me I was having a miscarriage and I just needed to go home and let it happen.  Come the following day, we were back at the ER to find out our little baby still had a heartbeat, but it was a threatened miscarriage that could certainly take a turn for the worst.  We followed up with my OB a few days later and baby was still doing great.  The doctor made it clear that I still had a high chance of miscarrying and that I probably didn’t bleed as much as I seemed to think I did. Needless to say, I immediately found a new doctor and had a few additional ultrasounds to check on the baby.  I had no more bleeding the remainder of my pregnancy and she was born a full-term tiny little 5lb 7oz baby via C-section due to her breech presentation.

PART 2

In July 2021, we decided to try for our second baby.  We loved having a spring baby, so we thought that timing would be great for our next pregnancy as well.  Once again, we conceived on the first try, and were expecting a baby to be due April 2022.  I am an obsessive tester, so I continued to pee on sticks every couple of days.  Around 5 weeks, I began to get concerned when my test strips were becoming lighter.  Sure enough, at 6 weeks, I had a tiny bit of spotting that turned into the most awful cramps and bleeding by the next morning.  I made the very familiar trip to the ER to check on the baby.  My husband stayed home with our daughter, so I went alone.  I was at the ER for nearly 4 hours where I had an ultrasound and bloodwork done.  The doctor finally came in to tell me that my HCG was very low and that there wasn’t anything seen inside of my uterus on the ultrasound.  “You must just not be as far along as you think” – the words that don’t hold true for any woman TTC.  I knew exactly the day I had conceived, which also meant I had my answer, I had lost our sweet Quinn. I was completely devastated, but I felt comfort in thinking this was a fluke and I would likely never have to go through it again. My doctor suggested taking 3 months to let my body heal, which I reluctantly abided by. 

Three months later, we tried again, and I was once again pregnant.  This time I was watching my tests even more closely to see they never even had the chance to get darker.  At 5 weeks on the dot, Peyton was gone.  I didn’t even make the trip to the ER this time since I knew exactly what was happening. I followed up with bloodwork, and sure enough my HCG had dropped to nearly zero. 

“Another fluke, you have a healthy baby, so certainly this is just bad luck.” 

We took a month off and had some recurrent pregnancy loss testing done.  All of my bloodwork came back normal, and my SHG identified a uterine anomaly, an arcuate uterus.  You know, the uterine anomaly that is no big deal and won’t cause you to lose babies… just keep trying, one will stick!

Two cycles later, I was pregnant again.  THIS TIME HAS TO BE IT.  There is no way we can have three in a row.  I watched those tests again and saw as they once again didn’t darken.  This time I was getting HCG tests from the moment I got pregnant, so I watched my miscarriage unfold in real time.  At 5 weeks, I once again lost a baby – our Riley. 

At this point, I had decided I couldn’t go through it all again.  However, when I discovered I was ovulating 10 days later, we said what the hell – let’s go for it.  At this point we finally had our appt that we’d been waiting months for with a MFM doc.  I found out I was pregnant the day prior.  She said she would watch me closely and would do anything in her power to help keep this pregnancy.  This time around, I started taking progesterone after O day, in addition to baby aspirin, a prenatal, an additional 4mg of folic acid and a vitamin D supplement.  I finally got those dark tests I dreamed of. The day I got the dye stealer, I was ecstatic. This finally felt like a win.  We had our first ultrasound at 7 weeks and we got to see that flicker on the screen.  It was magical.  A second ultrasound followed at 10 weeks, where we once again got to see our sweet baby.  Our MFM said we had graduated and could continue to just see our OB.  At the beginning of week 13, in my process of checking my toilet paper for blood, which had become a regular ritual for me, there was a tinge of blood.  I scheduled an appointment for the following day to check for a heartbeat and a follow up ultrasound for a few days later.  At 14 weeks, we watched our perfect baby bounce around the screen and even suck her thumb.  At this point, I felt so relieved that the bleeding was nothing. 

Three weeks later, I went in for my standard OB appt.  I was met by a new doctor who began to find the heartbeat.  Time was passing so slowly as she was searching with the doppler, and the excuses began for what might be going on.  She ran to get a hand ultrasound machine to find the heartbeat.  The second she paused, she didn’t even have to say the words… I said them for her.  “There isn’t a heartbeat!?”.  I was completely inconsolable.  I couldn’t stop screaming “NO, NO, NO! I just saw the baby a few weeks ago and they were perfect!! – This can’t be happening, please tell me this isn’t happening!” She rushed me to their other office to get an ultrasound to confirm, and sure enough, my sweet angel Bryn (we found out her gender after the genetic testing came back), no longer had a heartbeat. 

She was measuring to be about 13 weeks, so she likely passed almost immediately after we saw her in all of her perfection at the ultrasound a few weeks prior. I carried her for three weeks, still getting sick every single day, having no idea she was already gone. I felt like I had failed her in every way.  I scheduled a D&E for the following week, made the arrangements for her to be cremated and put in a teddy bear, and tried my best to be the best mom I could for the baby I have, but everything inside of me was empty.  I felt so lost, confused, angry, in denial, and probably just about every other feeling on top of that. I am now 2 months post loss, and am finally getting to a point where I’m not crying every day, but it’s all consuming thinking of what this past year has brought. To be so close and have it all ripped away.  

I am still working through so many feelings around the whole experience, including letting go of the timeline I had planned for my family and accepting this new post-loss version of myself. There has been one silver lining to this experience though; I have the most amazing support system through my husband, friends and family – particularly a couple of women I connected with on a loss forum back in December. The support and empathy these once strangers, now best friends have shown me is something I will forever be grateful for. Loss leaves you with such a feeling of loneliness, but being able to share your saddest, deepest, most vulnerable feelings with those who have been in your shoes, is the closest thing you can get to filling your heart back up.

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Coping With Loss

Life After Pregnancy Loss: Nicole

Nicole recently shared the story of her loss at 10 weeks of her baby Blueberry. This is another piece written by her of a more introspective look into her loss.

Sometimes I smash bugs, most times I try to save them. I killed a bug that was on the ceiling the other day. It was a huge, gray bug with 100 legs as long as my fingers. No idea where it came from… suddenly it was just running across the ceiling at lightning speed. I had a choice I guess, but that time I was no savior. 

Immediately after knocking it off the ceiling with a Swiffer and smacking it with my shoe, I had an intrusive thought… that bug was another bug’s baby. A mental picture, as big as a movie theater screen, of my dead, tiny 10 week baby, Blueberry, cupped in my bloody hands, froze in my brain. That bug was some bug’s baby. 

There are so many things no one ever tells you about miscarriage and pregnancy loss. Sitting in the doctor’s office on the day I found out my Blueberry no longer had a heartbeat, I thought they were giving me all the information they had as it related to miscarriage and it’s process. But no… They gave me lumps. They lumped physical pain and bleeding together as what to generally expect. They lumped together emotional pain and trauma as feeling grief. They lumped together the available methods of birthing my dead baby into 3 options. They handed me a pen, pointed to paper, said sign here, and after I did they sent me home. This is not to say I didn’t have a great medical team, because I did, but in that moment it was just their jobbut it was my reality.

My friend Sarah, a mama who lost her beautiful baby, Indie, at 17 weeks, recently had the opportunity to see a rainbow mom motivational speaker. Sarah said this speaker equated how she felt after pregnancy loss to size 72 font, colored bright red, bold, and underlined. It’s a great example because everything in my head IS size 72 font, bright red, bold, and underlined. There’s also a million exclamation points, and it’s also invisible ink. The huge red block letters that I feel like are projected over my head aren’t seen by anyone else. Some days maybe other mamas who have experienced pregnancy loss can see what’s written in this imaginary text box, but even then, miscarriage is a very isolated experience. Everyone experiences it differently, and like snowflakes, no two losses are exactly the same. 

I wanted to touch on 3 major key points that no one ever told me, but have tremendously impacted me and the slow (turtle speed slow) process of healing. There’s certainly more than only these 3, but these have been weighing heavily on me lately. I broke it into 3 parts labeled with headers. Putting accessible information out there about miscarriage and pregnancy loss is important to me… so it’s there for you to read it all, or just the parts that will quell some curiosity. Here we go. 

Smell

This part may be a little graphic for some readers, but it’s raw and it’s real. It’s apparently a normal occurrence, and something I wish I had known. So here’s the warning… feel free to skip the next 4 paragraphs if you may be a bit faint of heart (which is okay! Respect yourself and your own boundaries)! And if you find the below is happening to you after pregnancy loss, always notify your doctor so they can ensure there are no other underlying causes. 

I was bleeding ridiculously heavy and had been since I had Blueberry; changing huge pads that could have passed for diapers every hour because they were soaked through with blood and clots several inches long. And then one time when I went back into the bathroom and pulled my pants down, it hit me like a ton of bricks: I smelled like a dead, decomposing body.

I didn’t notice the smell immediately. I don’t remember noticing it the actual day that I miscarried… I think maybe the following day, or maybe even two days after, is when it became prominent. But when I say I smelled like roadkill had climbed up my vagina and laid dead there, I’m not exaggerating. One evening after I had already discovered the putrid smell emitting from myself, I was sitting next to my mama, a critical care nurse, watching a movie. She gently put her hand on my back and said “Colie, I need to tell you this, and I don’t want to upset you, but you smell like…. Dead…. Blood. Like some of my patients.” I asked Heath later if he smelled it too, and he simply nodded. The smell radiated out of every pore, and clung to my pants, shirts, and even my socks. If you went into a bathroom 15 minutes after I had left it, the pungent odor would sting your eyes.

I’m sure at least one person is wondering “wow, how bad did this dead baby look if she smelled so bad?” Blueberry didn’t look decomposed at all. Blueberry actually had a nice healthy, glossy look when my mama initially rescued him/her from the toilet. But my body had began processing Blueberry’s death 2 weeks and 4 days before I actually had Blueberry, and it seeped through all of the layers of the uterus that I would later shed heavily for nearly 2 weeks afterward.

Having previously interned in a homicide unit, and now working as a police officer, I’ve smelled more rotting human flesh in hot, sealed houses and on autopsy tables than I’d like to count. It’s a smell that’s unmistakable… it lingers in the nose, in the hair, and on clothing. It’s not something that can be described to someone who has never smelled it, and it’s a scent that stays with you forever, long after you’ve washed it out of your nose, hair, and clothes. But the fringe benefit to smelling decomposition in a professional environment is that it’s (typically) an adult stranger’s odor, and it’s NOT your own dead baby’s odor that has creeped it’s way into every orifice of your body. 

Resentment Towards Heath 

Heath is Blueberry’s dad, and my boyfriend. He’s 10 years older than me, but can run a mile and a half in 10 minutes (I can’t). He’s a former combat marine, active national guard, and a police officer in the same police department as me. He has 3 teenagers from a previous marriage, and they are with him full time. They never see their mom. All of this makes him who he is, and impacts the lense through which he sees the world. 

I always admired Heath’s dedication to his kids. I knew walking into the relationship his kids came first, and that’s the way it should be. I come from a rocky home where my father is not a good role model, and Heath’s focus on his kids was one of the (many) things that drew me to him. Although Blueberry wasn’t planned, as soon as I found out I was pregnant, I was ecstatic, and had no concerns about bringing a child into the world with him. 

When we learned Blueberry no longer had a heartbeat, Heath was more logistical than he was emotional. He wanted to know why, he wanted an in depth explanation, he wanted statistics and concrete, irrefutable evidence that this was surely happening. I, on the other hand, heard “I don’t see a heartbeat,” and I stopped listening and started sobbing. Everyone grieves in individual ways, and I know that. But immediately the difference in Heath’s and my coping mechanisms were off putting for me. Why was I crying puddles, and he had hardly shed a tear? He told me he was devastated and sad, but I couldn’t SEE his devastation and sad, so instead, I started seeing red. What I believed was his lack of emotion was infuriating me. 

I’ll expand on this more in the next section, but I temporarily left the state a week after we found out Blueberry had no heartbeat, and 4 days after I birthed Blueberry. Heath was leaving for annual training for the military during that time frame, and I didn’t want to be alone in the apartment where I had just given birth to my dead child. Understandable. 

Once in New Jersey, I had texted and called Heath about our Blueberry, and he would respond and try to be as comforting as possible. One night I was specifically speaking to him about burying Blueberry and all of the emotional pain that would come with it, and shortly after responding about burying Blueberry, he told me (for the second time that day) it was his son’s birthday. I snapped. My fingers worked just as fast as my brain as I spit back “I know. Good thing you have a living kid to have a birthday for.. my only one is dead.” It came out like venom. And while I was on a roll, f*** their mother too, who was blessed with 3 babies that she didn’t even want and never cared for. I was given 1 that I wanted in the worst way, and it was taken from me. 

It was wrong. What I said was wrong, cold, and cruel, and that’s also what the world around me felt like. Of course I wanted Heath to enjoy his son’s birthday, and I wanted his son to enjoy his birthday as well. Heath had just lost his baby too… as much as I was supposed to be Blueberry’s mama, Heath was supposed to be Blueberry’s dad. And his son lost a sibling. But no matter how far down I reached to find some feeling of guilt for what I had said, and no matter how hard I tried to be sorry, I wasn’t. At the end of the day it was Heath: 3.5, Nicole: 0.5. Just like when we’d run the mile and a half, Heath was in the lead again, with his 3 healthy kids, making a birthday cake, and finding a reason to smile. And me? I was in tears over burying my half baby, my dead baby, my only baby, in a shallow hole in my backyard. 

My anger towards Heath was displaced. Heath didn’t hurt Blueberry, Heath didn’t abandon me before, during, or after Blueberry was born, Heath didn’t harbor any anger, blame me, or yell at me for the death of his 4th child. He actually had done the opposite of all of that. Before that fateful day, he would come in from work and kiss my belly, he held my hands, wiped my tears, and rubbed my back during the agonizing 21 hours of labor I endured to birth our baby that we already knew was dead, he empathized with my grief, and assured me it was NOT my body that failed Blueberry. 

We’re okay. We’re working through our grief one day at a time, sometimes even one minute at a time. His kids are great kids. I’m looking forward to being around them again when I get back into the swing of things, but I also know it’s okay if there are days I need to stay home and let him go spend time with them on his own. Heath and I are compatible, we just handled this crisis in different ways. Our pain is shared; it’s not processed individually, it’s just processed uniquely. 

Heath, if you’re reading this, I love you baby. 

Separation Anxiety 

I’m originally from New Jersey and am now a transplant in Louisiana. My mama had coincidentally been visiting me in Louisiana, and was there when we found all of this out, was there when I actively miscarried, and there a few days after. I was going to be out of work for awhile to heal, so I decided to fly back to New Jersey with her for a change of scenery and to spend some time around my family and friends. My mama was going to be home for a few days after returning to New Jersey, and then was going to visit my sister who lives in Rhode Island for a few days. I opted not to go because too much scenery change was overstimulating. 

The night before she left for Rhode Island, I realized it was the first time in over 2 weeks I would be away from her again. And it would be the first time I’d be away from her after having Blueberry. I felt a dread filled tingle make its way down my spine and my eyes filled with tears. I found my mama in her bedroom packing her suitcase, and told her I thought I was on the brink of a separation anxiety spell because she was leaving. She hugged me and told me I probably was, and if I needed her while she was gone, I could take the train and meet them in Rhode Island. 

The morning she left for Rhode Island I woke up at 5 am to pack her suitcases into the car, and I repeated over and over in my head that I’d been living alone for over 2 years, 1,350 miles away from her in Louisiana, and had done just fine. That kind of self pep talk is usually a good indicator that I am not fine, and I was not. 

Trauma bonding is a real thing. My mama held my hand through a series of the most traumatic days of my life. She and Heath are the only two people on the Earth that will have ever seen me covered in tears, snot, and blood, as I birthed and held my dead baby. As close as I’ve always been with my mama, our relationship will forever be different now. 

There were so many things I thought I knew about miscarriage, and the reality was I knew damn near nothing. The ones plaguing me recently are the ones I discussed here; physical changes, and relationship changes, even how I felt about killing a bug. Then there’s all of the things I haven’t touched… like physical pain, clotting, intrusive thoughts, nightmares, life as a first responder after the loss of a child, guilt, fear, bitterness, and dodging the baby aisles, just to name a few. From the moment I walked out of the doctor’s office the day we found out Blueberry’s heart stopped beating, the way I saw the entire world changed. And I hate saying it that way because it’s so generalized and vague, but just in the way there is no way to describe the smell of death, there is truly no way to articulate the way in which my universe shifted after losing Blueberry. 

The biggest “lump” takeaway is grief is not linear. There are ups, there are downs, there are seconds I can laugh, minutes I’m neutral, and hours I can only cry. Losing my baby was different than losing anyone else I’ve ever loved. The grief is different, the pain is different, the ache is different. Different, different, different. I just f****** want my baby back. 

I could write forever if I really wanted to get into the nitty gritty of all of the things I’ve learned from this experience. I’m also open to questions and suggestions. The only way others will learn about the things no one tells you is if the people who have lived it start talking about it. I’ll end this with a quick note to my Blueberry:

Mama loves you Blueberry. Even if it ended the same, I’d do it all again if it meant I could hold you again, cupped in my hands just like you were, and tell you how much I love you and how much I would miss you.

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Miscarriage

Nicole’s Story

Blueberry

Written for those who are curious, those who don’t know what miscarriage is like, those who think they do, those who share the same pain, and those who will… and also written for me by me as a way of trying to put the pieces back together.

They say writing is healing, and I guess I’m desperate for solace. This is the story of the life, death and birth of my baby, that we called Blueberry, and me trying to figure out where I go from here… all in a word document. 

On March 19, 2022 I got 2 lines on my pregnancy test (that I never expected to be positive) and from that moment on I had crippling anxiety and an overwhelming sense of dread that something was wrong with my baby. No reason for it, just did. I had never been pregnant before, and thought I was supposed to be excited (I was thrilled I was pregnant, not thrilled about the feeling of impending doom). I thought I was supposed to be bursting with joy. The only thing I was bursting with was fear. I called an OB and made my appointment. My first scan showed my baby was 6 weeks and 3 days (thought I was 7w/3d, but ovulation was off). Everything was “perfect”… perfect measurements. Perfect heartbeat. 

I had intermittent spotting starting around 7 weeks. Nothing heavy, nothing bright red. I called my OB several different times over the next few weeks concerned, and the nurse told me I had a had a 1cm subchorionic hemorrhage on my first scan, and to attribute my bleeding to that. She said it had no effect on the baby and not to worry. All I had done since I found out was worry. But alright nurse, if you say so. 

When I called yet again at exactly 9 weeks for more spotting, they told me I could come in for peace of mind. Again, baby looked “perfect” with a heartbeat of 175 and measuring on target at 8 weeks and 6 days. They found a cervical polyp at that scan and said I was spotting from that too. They told me I now had not one, but TWO reasons for my consistent light bleeding, and I would likely bleed on and off throughout my whole pregnancy. The nurse told me to only be concerned if I started bleeding so heavy that it filled a pad in an hour or less. They sent me home with ultrasound pictures. I walked to the car and called Heath near tears and told him that they told me everything was perfect but I didn’t feel like it was. I had by all accounts an “easy” first trimester with virtually no symptoms. No nausea, no vomiting, no debilitating exhaustion, etc. which made me worry even more. He told me I was lucky, and it was just my hormones and first time mom jitters. My mom and best friends agreed. I felt no better, but I believed them. 

At exactly 12 weeks (May 16th) the spotting started up again with light cramps (nothing new), and when I went to pee, I wiped about a dime sized clot onto my toilet paper. I was tired of crying wolf, but I was still drowning in anxiety and fear something was wrong. So after much deliberation with myself, I called my OB yet again. They told me I was likely finally passing the subchorionic, and they weren’t concerned, but if I felt I needed to, I could come in again. I told them I’d be coming in. The nurse made a joke about me being a regular. 

I laid down on that crinkly paper, stuck my legs up in the stirrups, took a deep breath, and had another transvaginal ultrasound. I watched the tech measure and when I saw 10 weeks on the screen I felt a wave of nausea. The tech said nothing, so neither did I. A few more clicks, and the tech asked me how much I had been bleeding. I told her I was spotting. Radio silence. Then, in my own head, I immediately confirmed what I already knew. She had never asked me that before, even all those times I came in because of bleeding. The measurements on the screen were never so far behind. She normally played the heartbeat pretty quickly. Then it came… “I don’t see a heartbeat.” My initial sobs didn’t produce tears, but there we plenty of tears that followed. When the nurse came in to hug me, I bawled into her shoulder and just kept repeating “I knew it, I knew it.” What broke my heart even more is my mama was there with me, and she didn’t realize what was going on until the tech said there was no heartbeat. 

Baby had stopped growing at 10 weeks. I had been carrying my dead baby for 2 weeks. When the OB came in she pointed out signs of what she believed may be a chromosomal abnormality on the ultrasound, but was unable to determine what exactly it might be. 

I was given 3 options. I could wait until I miscarried naturally, I could take a pill that would induce miscarriage, or I could have a d&c. I was adamant I wanted a d&c… I knew not having it would only make this bad situation worse. But the OB informed me there were no available appointments in the OR until the following week (May 23). I signed the paperwork for the d&c in the office anyway, and also signed for the tissue testing to see if a reason for my baby’s demise could be found. 

When I got home, I cried puddles of tears. I wished the d&c wasn’t so far away because I didn’t want to carry my poor dead baby anymore. But at the same time, I was praying it didn’t kick in naturally before then, because I didn’t want to add that to my portfolio of pregnancy loss experience. The trauma of a missed miscarriage was enough. 

Wednesday afternoon around 12:45 pm the spotting increased to a light bleed and the cramping started creeping in. My mama gave me ibuprofen, a heating pad, and all of the comfort she could for a grieving first time grandma. Heath held me close and let me squeeze his hand and arm every time I contracted. As time ticked on, the pain worsened. I had a bit of a reprieve over night and was able to sleep for awhile. And then 6:30 am on the dot, a full force lightning bolt of pain woke me up. And so it began… everything I did not want to happen began.

The pain was excruciating. My mama gave me maximum ibuprofen and Tylenol doses at the recommendation of the on call OB (my OB office was not open the first time she called). I might as well have been taking tic tacs. I was up, down, laying on my stomach, on my back, on my side, on my other side, on my bed, on the couch, on the chair, pacing the living room floor, squatting, sitting on the floor, laying on the floor, writhing in just about every position and location one could think of. I held my lower belly the whole time, groaning loud in pain, with my eyes squeezed shut. I could not even speak the pain was so bad.

My mama called my OB again at about 9:15 am, and the nurse called her back. She told my mama the doctor could put in a Percocet prescription if my pain was uncontrollable (uh, duh), or the other alternative was to take me to the ER. My mama, bless her critical care nurse heart, said the ER would probably only give me tic tacs and a $400.00 bill. 

While she was on the phone with the nurse, I suddenly felt the most strange sensation. It was like a popping, ripping feeling deep in the lower belly. The pain immediately stopped, and as I began to sit up I felt a huge gush of fluid come out of me. I raced for the bathroom and made it to the toilet. All I did was slightly release the muscles, similar to what it’s like to pee, and I felt the ENTIRE contents of my uterus dumping out of me. My mama was standing next to the toilet and I had my face buried in her chest, sobbing, shaking, yelling in pain, and repeating “I’m so scared..” over and over and over. At about 9:20 am on May 19 my baby, who we had always affectionately called Blueberry, was born still. 

When I no longer felt solids pouring out, I pulled my face away, continued to sob and asked her to wake up Heath, who was asleep in my bed. The poor man had slept about 5 hours in the last 36 hours between caring for me, his kids, and working night shift. I stayed on the toilet and she brought him in there. As traumatic as it was for me, I’d imagine it was traumatic for them. They had to stand there helplessly watching me in physical and emotional agony. I labored 21 hours with my dead baby. When I finally stood up from the toilet, I had tears and snot all over my face, and blood pouring down my legs to my knees. 

I had initially told them I didn’t want to look in the toilet so the two of them did. It was just a sea of crimson… so I did look and it was so solid colored red that none of what I had passed was visible. Heath handed me wipes and I cleaned up as best as I could, and then packaged myself up with overnight pads that my mama handed me. Heath and I went out to the living room and I put the heating pad back over my belly. My pain had definitely subsided from what it had been, but it wasn’t gone. Heath rubbed my back and I just sat silently, trying to make sense of everything that had just happened. My mama asked me if she could check the toilet (bless her critical care nurse heart again) and I told her she could. She gloved up and went back in the bathroom to wade through the bloody water. 

A few minutes later I called out to her asking if she had found everything, because I was afraid it wasn’t over and I would be passing more. She gave me a weak “yes.” I asked her if she found my baby, and an ever weaker “yes” followed. My heart sank. I asked her if she could bring me Blueberry. 

My tiny, 10 week baby was perfectly formed. Blueberry had all his/her fingers and toes, and his/her little ears, eyes, nose, and mouth were visible. Blueberry’s little legs were closed, so there was no way to even try to determine if he/she was a boy or girl. I held my tiny baby for a few minutes, and then we gently wrapped Blueberry up in paper towels and laid him/her down in a plastic container. 

Because I miscarried naturally I was unable to get the uterine tissue tested. The tissue needs to be immediately submerged in special chemicals, which obviously are not found in toilet water. I have so many questions about what happened to my Blueberry, but they are questions I’ll never get answers to… At least not during my time on Earth. 

In the days following the miscarriage, the bleeding was extremely heavy, soaking an overnight pad an hour, and the clots I was passing were several inches long. It was a constant reminder I had birthed my dead baby just hours and days before. I smelled like blood.. it seeped out of every pore for days. The physical pain would come and go. By Sunday, the pain had changed from legitimate pain to bad menstrual cramps that the ibuprofen and heating pad finally eased. 

A friend of mine, Sarah, who is also a mama to a beautiful still born baby girl named Indie, told me she calls the stage of grief immediately after miscarriage “seeing the world in black and white.” And black and white it is. I know I need to eat, but food has no taste. I know I need to sleep, but I only sleep 3-4 hours a night. I know I can hear, but things sound muffled. I know jokes are funny, but I don’t feel any joy. Black. White. I sat in the park with my mama one evening and watched the people, ducks, birds, squirrels, and ants and thought “there is life.” Then I remembered my tiny, still baby cupped in my hands just 2 days before and thought… “and there is death.” Black and white. My mind is empty… my belly is empty… I’m empty. I see no light at the end of this tunnel. Who I was before and who I am now are two different people. I am forever changed. 

The support system I have cannot go unmentioned. In addition to Heath, my Mama, and Sarah Rodriguez… my extended family and my closest friends have been incredible. Lindsey, Kevin, Aunt Denise, Kaitlyn, Aunt Linda, Sarah DeLuca, Kristen Judge, Sarah Lodato, and everyone else who has reached out, thank you from the bottom of my heart. You have all helped me sort through the aftermath of this traumatic experience. 

The devastation and grief felt after ANY miscarriage or ANY pregnancy/child loss is indescribable. It shatters what is left of my heart to know so many women have traveled this road before me, and so many will after me. I never in a trillion years thought it would happen to me until it did.

I’m afraid I’ll never be a mom. I’m terrified to be pregnant again because I’m terrified this will happen again. I don’t think I can live through this twice. 

The moral of the story is, always trust your gut mamas. A mother’s instinct starts at conception and will continue until our very last breath. Us women don’t get enough credit for the sh*t we endure. 

I’m sending peace and healing to each and every mama who can relate. For mamas who have never experienced this, I pray you never do. Squeeze your babies extra tight tonight. For those mamas holding their rainbow babies, my heart is happy for you. I believe your angel baby hand picked him/her for you. For those mamas who, God forbid, find themselves facing something like this, feel free to reach out to me. If my experience could one day be someone else’s survival guide, then Blueberry’s short life wasn’t in vain. Sarah’s story became my survival guide, and I hope to one day become what she became to me. 

And I could never forget those mamas who are still waiting for their rainbow baby… our time is coming.

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Miscarriage

Emily S’s Story

Noah

May 2nd, 2022. 

I should be having my baby today, but six months ago I went through the most physically and emotionally painful experience of my life. I woke up excited for my second ultrasound and my blood work that would tell us the sex of our baby. It was like any other Thursday: I got us ready and took my son Alex to school. I went for a 3 mile walk/run, and then to Valley Thrift because I still needed some props for my Beauty & the Beast table. It wasn’t until I went to the bathroom at Alex’s school that I saw I had spotted. The five minutes between that realization and picking him up lasted an hour in my mind; the two hours until my ultrasound felt like an eternity. I willed my baby to be okay. But when I had my ultrasound, my worst fears were confirmed: my baby, who I had seen dancing on the screen and whose heart I heard beating strongly inside of my body just two weeks before, no longer had a heartbeat.

 I felt like my body had betrayed me and I had failed. I was in shock during the hour after finding out, waiting to talk to the doctor, etc. How could this have happened when I had such a great pregnancy with Alex? How could this have happened when being a mom is who I am? I had to call Adam with the worst news I’ve ever had to share with him, and then pick up Alex from my parents’ house because life continues. That night I went to bed knowing the baby who was once thriving inside of me was now lifeless, and with what was the beginning of labor pains, and the most physical of emotional pain I have felt.  Six months later, my body still aches every time I think about it, like a muscle memory I never wished to attain. The gravity of carrying both life and death inside of you is not something you’ll ever forget. 

I couldn’t be scheduled for my D&E until Saturday, so on Friday I went to get my pre-surgery Covid test and shopped for paint for my castle project, then I went to Bill’s to get donut holes for Alex to have Saturday morning at my mom and dad’s while I had my procedure. I also did two loads of laundry at home.

Even while having an active miscarriage, I wanted to make sure my family was taken care of.

 As the day went on, I started to have a lot of pain, and it was throbbing in my back and hips and shooting down my thighs—it felt like contractions, and it wasn’t until later I found out an active miscarriage is basically labor. Why didn’t they tell me how this would feel?? Everyone who says a miscarriage is like a heavy period? False. It started to feel worse after my errands, but by night the pain was so excruciating I couldn’t stand up straight when I walked or even sit up straight. It was an incredibly long day. 

I had to be at the hospital by 7am on Saturday, so we needed to drop Alex at my parents’ house even earlier. He was soo excited to be out driving when it was still dark out—there were Halloween lights and decorations that we had never seen before during the day, so he was thrilled about that. He still talks about how fun it was to get up early and drive in the dark during Halloween time; even though it stings when I remember why we were driving so early, the fact that he holds it as a special memory makes me happy. 

At the hospital, I had to go to the Labor and Delivery unit; I was checked in and taken into what would be my prep and recovery room for the morning…which happened to be the same recovery room we were in when I had my c-section to deliver Alex. The same room in which I met and held my firstborn, was the same room in which I had to say goodbye to my second. I held it together until we walked down the hallway past the newborn portraits—a special form of torture for any woman who will never get to see the face of the baby she is there to have taken from her body. 

The procedure went smoothly, and when I awoke from anesthesia my body felt so much better physically; I was too far along to have my miscarriage at home, but I can’t imagine enduring that pain for any longer than forty hours anyway. I was given paperwork with a certificate of death and a list of groups I could contact for grief support. Our baby’s remains would be buried at Calvary Cemetery. 

I was 11 weeks along, and we hadn’t had the chance to tell many people yet, even though I was confident everything would go just as smoothly as when I was pregnant with Alex. It’s problematic when we feel discouraged from sharing news of pregnancy until after the first trimester.

From the moment I saw my positive pregnancy test, I was carrying our child. I talked to my baby every day, encouraging its tiny soul to flourish inside of me. I pictured our life as a family of four before we had even conceived, so when I heard my baby’s heart beating for the first time and saw my baby moving, I had no reason not to plan—not to hope. 

We still hadn’t told many people yet because we wanted to tell Alex first, and were just about to announce our great news when it all came crashing down. So when I had my miscarriage, since I had only told a handful of people, the story I was now sharing put my loss at the forefront, instead of celebrating the life I was lucky enough to create and carry in the first place. It became a very confusing process for me to navigate. 

Those who did know will ask how I’m doing—but how do you tell someone that you don’t know that you’ll never be okay again and that your whole entire heart has shattered into a thousand pieces and no matter how hard you work to put it back together, there’s always going to be entire shards that are missing now. Forever. How do you put that kind of hurt on another person’s heart? I just felt so responsible for protecting everyone else from my suffering, but in doing so I cheated myself out of my own grief. 

The holidays were hard—I felt stupid for ordering my skeleton maternity shirt for our Halloween pregnancy announcement. I tried to stay joyful for Alex, but I couldn’t help but feel slightly bitter at Christmas time when I should have been halfway through my pregnancy and wearing funny Christmas maternity shirts and thinking about how we’d have a seven month old addition to our celebration the next year, and what a fantastic brother Alex was going to be. Even though he hadn’t known I was pregnant, he talked about having a sibling all of the time, and what a good helper he would be to me. It broke my heart that I couldn’t give that to him. 

Today, I should be feeling all of the emotions I felt the day I went to the hospital to be induced for Alex: excitement and fear…so much fear…but also so much calm and readiness. I was so lucky to be having my baby. My body was aching and ready, and my mind overcame every doubt because I knew in my heart I would be able to nurture him and give him the best parts of myself. As soon as I found out I was pregnant this time, I think my attachment was immediately so much stronger because I knew how amazing the outcome would be. I already made a really awesome human, how lucky was I to get to do it again? Unfortunately, Noah’s story had a different outcome, and though he’ll never join us on earth, it comforts me to know I will hug him one day in Heaven. 

I never thought I would so heavily mourn the loss of someone I never really met. I just didn’t know. It happens to sooo many women, but I’ve only known a few women who lost their babies, and their pregnancies were so much further along than mine; they all had to delivery their stillborn babies, while I got to sleep through my procedure. I didn’t think I had any right to compare my grief when I had a first trimester loss. But grief counseling has helped me acknowledge my loss as real, and my feelings as valid. My experience and Noah’s existence, however brief, matter. 

My greatest source of support has been my friend Jenn, who lives states away, but has checked on my constantly since the day I reached out to her. She has always been so eloquent and forthcoming about losing her babies Hope and Anakin, and she was one of the first people I knew I could trust with my complete disclosure and heavy heart over the past six months. She’s also the reason I’m finally sharing my story because if I can make just one woman feel less alone, it’s so important I do. It’s just taken time to get to the point where I feel ready.

 Even though I only got to carry my baby for two and a half months, I still experienced five months of post partum symptoms, which was another thing I had no idea to expect. But it makes sense: my body was pregnant and grew a placenta and produced an extreme amount of hormones in that two months, so I still had to have that adjustment period. I just didn’t know it would be as long as my full term pregnancy. Human biology is miraculous, but so so weird.

During the past six months, we’ve learned that for a variety of reasons, we won’t be having another child. But I feel so incredibly lucky to have Alex: my perfect and wonderful soul, and some days I still don’t believe I was so blessed to get to be his mom. That is a privilege not lost on me. But I can’t deny the fact that I am still processing so much, and grieving the life I always envisioned us to have. I know nothing in this world is certain, (and that lesson has hit us more than ever lately) but I do know that I will do my absolute best to make sure Alex knows every day how loved he is, and that he has the most fulfilling life possible. He is everything to me, and I’ll never let him not feel that. 

Today, I’ll work as much as I can and I’ll have ice cream for dinner and I’ll love who I hold dear, and every day I’ll continue to hold Noah’s memory in my heart. Forever. 

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Coping With Loss

Cemetery Visit

CW: mention/image of living children, images of grave sites

Two and a half years after Anthony’s remains were buried, we finally made it to the cemetery.

Weird, right? Normally when you lose someone close to you, you’re there for their funeral.

That unfortunately wasn’t the case for us (read about this nightmare here).

When Anthony was buried, we weren’t invited. He had been buried for a month, and no one told us. We went to the cemetery shortly after we found out, and the grave wasn’t marked.

Not being able to find him in a cemetery felt oddly similar to not being able to find him on an ultrasound…

Shortly after our miscarriage and the torrential downpour of crap that followed, we moved across the state. I was newly pregnant again and while I was so grateful, I was terrified as it was. I couldn’t put myself through the pain of going there again and searching and searching for him, his only mark of existence on this earth.

So, I never went.

Until Saturday.

We made plans to visit some friends back where we used to live, where we had our miscarriage. As we set the schedule for the weekend, I just so happened to be condensing our story for another blog post and was reminded of the cemetery plot. After a quick search, I realized the cemetery was only 10 minutes away from our friend’s house. I dove deep back into my inbox to find the afterthought of an email from the cemetery with shoddy directions for the plot, complete with a half-hearted, too-little-too-late apology. I swallowed my pride and saved it, and decided it was time to go.

The day of, the reality hit me.

What if I couldn’t find the stone again?

What if they lied to placate me?

What if this sent me into a grief spiral?

Was I really going to do this to myself again? To my husband? Risk diving back into the pain and frustration of that horrific day, for what?

As quickly as those thoughts came forward, they were replaced with answers.

“to get closure”

“to see what you accomplished”

“to hold your earth-side daughter and honor your son”

“to see how far you’ve come.”

I needed to do this.

We pulled up to section 42, the “infant section.” I referred to my “map” and began to look.

We split up and walked up and down, looking at each name just like we did two years ago.

I became very aware of how small the spaces were in between the grave stones. “Smaller bodies,” I thought. I wanted to puke.

My steps quickened as I realized I wasn’t finding what I was looking for.

Again.

Just like we did (or didn’t) two years ago.

“God, I can’t do this again. Please find it for me. Buddy, please show me where you are. Please.”

Over and over.

I can’t do this again.

I can’t do this again.

Not again.

“Britt!”

I looked up to see Preston, holding our daughter, staring at the ground. I followed his gaze, and off to the side of a tree (very opposite from this stupid “map,” mind you), were four new grave stones, and one temporary one.

We found him.

I looked at the date of the first one, all the way to the left. His. January 27, 2020. Almost a month after he was taken from me. A week after I stopped calling the hospital and cemetery to see when his remains would be transferred and buried. A month shy of when I finally called again to check, and found he had been buried without notice. Without us there.

I looked at the others: July 1, 2020. January 7, 2021. July 8, 2021. And the temporary one, marked “KHN Infants” 2021-2021.

This cemetery plot was reinstated right around the time of my D & C. It was so new, it wasn’t even a check box on our paperwork, hence the miscommunication between the hospital and the cemetery. When I called in June of 2020 to check on the grave site and heard that it still wasn’t marked, I had enough. The real kicker? When I called, I found out that 15 other families were on that list. That’s 15 other families that had no idea their babies were buried. 15 other families that were promised a “ceremony” that was cancelled without notice. 15 other families without clear instructions of where the plot was located in this massive cemetery to even go to properly grieve their loss and pay their respects.

In June of 2020, I filed a complaint with the hospital network, wrote a letter and with the help of a few (read: probably around 50) friends, was able to raise enough awareness on the lack of communication and sensitivity to the matter that a team was created within the network to better bridge the gap for loss parents. They created set instructions for how loss parents could visit the site, promised to improve communication and ensured invitations for bi-annual burial ceremonies would be sent if families chose this option. These babies deserved to be acknowledged and honored. I was done with being shown otherwise.

These five grave stones were proof that Anthony’s life made a difference. His life helped others to be recognized. Without that grave stone all the way to the left, there wouldn’t be more. He made a change.

Wow, bud. Look what you did.

As I stared at those five plaques and thought of my son, I couldn’t help but feel the extra weight of the privilege in front of me; my earth-side daughter running around in the grass. Could I have ever dreamed on that awful day searching for his grave two years ago that I would find such beauty in this place?

My first baby, at peace. Acknowledged.

Other pregnancy loss babies, at peace. Acknowledged.

My second baby, here. Close to her brother always.

What a gift.

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Miscarriage

Katie’s Story

It all started on June 30, 2021 when I took a pregnancy test to learn I was pregnant. I still have the cutest video of me showing my husband the pregnancy test while he was holding our son (2 years old at the time) on the couch and smiling when he realized we were going to add our third child to the mix. My son smiled too…it was all so sweet. My husband and I were both so excited and honestly I didn’t realize how badly I wanted another baby until I was sitting there processing it all. This would be our third child and would complete our family.

My sister had also told me she was pregnant a couple weeks before, our babies were going to be 5 weeks apart! Again, another sweet video of me announcing to her that our children were going to be best friends via newborn onesies. Another video I cannot bring myself to delete and that I will probably never share.

I told all of my sisters and my mother, but kept it at that because I wanted to see the heartbeat at my first ultrasound. For me, having already experienced a pregnancy loss with my first pregnancy, seeing the heartbeat on the ultrasound helps ease that first trimester anxiety nearly every mother has probably felt.

I went in for my 8-week ultrasound on July 29, 2021. (8 weeks and 3 days to be exact as I knew the date we conceived). I was by myself as my husband had to work and I was fairly confident that we were ok. When I say that, I mean I had all the pregnancy symptoms (tender breasts, gagging when brushing my teeth, hell! my stomach had even grown) and I had not had any bleeding to indicate otherwise. The tech started on my belly with the ultrasound and had the screen out for me to see. Going through two pregnancies already, I knew what to look for but wasn’t seeing it. After a while the ultrasound tech said that we would have to go vaginally to get a better look because I wasn’t as far along. She asked me to confirm the start of my last period date and started the ultrasound again, this time without showing me the screen. That should have been my first clue.

Katie P.

She kept a good face on and after a while she said she needed to go get a physician to speak with me. I looked at her and asked what was going on and she said “there is no baby.” She said there is a gestational sac but it appears to be empty. I sent a text to my husband and I texted my sister, who had sent me well wishes before the appointment. I couldn’t believe that this was happening to me. Not in a million years did I think this would ever happen to me again.

The OB on shift at the time came in and told me that I was most likely miscarrying because the shape of my uterus looked to be shrinking. What she didn’t see in the ultrasound or what didn’t draw her attention were the grape like cysts. I cried and asked some questions which she answered and she gave me a hug which was comforting…I love hugs. Before I left they drew blood to check my hCG levels, they scheduled me for an appointment with my regular OB and told me to get another blood draw the day before that appointment. Then they sent me on my way.

I made it out of the waiting room and to the comfort of my car before I just completely lost it and sobbed. On my drive home I called my pregnant sister and sobbed some more. When I got home, my husband called after seeing my texts and said he was on his way home from work so I wouldn’t have to be home alone. It was a long, long, dreadful day. Many of the same emotions as my first loss. I had immediate thoughts of “what did I do wrong?” “Why me?” “This isn’t fair.” You name it, I thought of it that day.

August 1st – Ultrasound Results:
Uterus: Irregular shaped gestational sac with no yolk sac or fetal pole visualized. Heterogeneous tissue noted surrounding the gestational sac.

I got my blood drawn as instructed by the OB. On July 29th, my HCG levels were at 90,051. On August 3rd, the levels came back at 155,076. I thought, “huh? How can it be rising? With my last loss it went down…maybe, just maybe the OB, the ultrasound tech, and the ultrasound results are just wrong. Maybe the baby isn’t as far along as we thought?” For some reason I actually had hope going into my next appointment that maybe the baby was still there…

On August 4th, I saw my regular doctor and she took one look at my ultrasound and combined that with the rising hCG levels and said “this looks like a molar pregnancy.” She ordered another ultrasound and once she saw those images she confirmed that yes, it was in fact a molar pregnancy and ordered a D&C to have it surgically removed the following day. The small hope I had of there being a baby was crushed and now I had to start digesting this diagnosis.


Most of you I’m sure have never heard of the term “Molar Pregnancy” and I’m sure you want to know what that is. This is how I understand it: so, there are 2 types of molar pregnancy. One is a partial molar where two sperm fertilizes one egg 69 chromosomes total; 23 chromosomes from the egg and 46 from the sperm. A baby can form in a partial molar, but will not be viable. The other is a complete molar pregnancy where an empty egg with no maternal chromosomes is fertilized by one or two sperm. Meaning 23-46 chromosomes, but all from the sperm, no genetic material from the mother. No baby forms. In a normal/non-molar pregnancy you get 23 chromosomes from the egg and 23 chromosomes from the sperm. So a tumor formed in my uterus instead of the placenta and it became a mass of fluid-filled sacs/cysts. This was the knowledge I had going in to get the surgery to remove the molar pregnancy.

August 5th was D&C day to remove the molar pregnancy. Before I went into surgery, we had my OB explain what we should expect and what would come of this, etc. She said that once we get everything out they would send it to pathology to discover whether it was a partial or complete molar. She said we would hope for a partial molar. She explained that if it’s a partial molar we will monitor your hCG levels until they go to 0 and when the levels return to 0, we would be able to try again for another baby. She said if it’s a complete molar that again they would monitor my hCG levels until they return to 0, but that I would have to be placed on the birth control pill to ensure that I do not become pregnant for up to a year to ensure that my levels never rise. In both partial and complete molar pregnancies, hCG levels are monitored weekly to make sure the levels are going down. If the hCG levels ever plateau or rise then that means the tumor is growing back and I would have to undergo chemotherapy to remove tumor cells and reduce the chance of it spreading to my lungs. My OB assured me that this becoming cancer is super rare and only happens to 15-20% of women. But my first thought was, “yea it’s rare, but so are molar pregnancies and here I am.”

I am another statistic. I am 1 in 1,000 women in the US. I just wanted a baby to complete our family and I ended up with a tumor…and now there is talk about possible cancer? This is so unfair.

As I laid there waiting to be put under for my D & C, I was looking up at the operating room lights and couldn’t believe that this was the second time in a year that I was looking up at those lights (August 2nd 2020 was my appendectomy. My daughter was only 11 days old). For some reason, I find those lights terrifying, even though both my surgeries are very routine and less invasive, it’s still terrifying to be put under anesthesia hoping nothing goes wrong and you wake up! My OB held my hand as I was being put under and that helped a lot. My OB was very happy with the surgery, there was minimal blood, they removed it all and we would meet in 2 weeks to discuss the pathology results and move forward with a plan.

The pathology results from my surgically removed molar pregnancy indicated that I had a complete molar pregnancy, meaning back on birth control and not allowed to become pregnant. That was another hard pill to swallow. I want to have my baby on my own timeline and my own terms, I don’t want it to be dictated by doctors. Also, a complete molar pregnancy means a baby never formed. Was I even allowed to grieve if there was no baby at all? I remember getting this news as I was getting ready for work and I just sat there crying on our couch. After I allowed myself that cry, I got the kids ready and off I went to drop them off at the sitter and go to work. I could have taken time off, but work was a distraction. 

I was placed on birth control to ensure I would not fall pregnant and I had to go in every single week to get blood drawn to check my hCG levels. It took 7 weeks for my levels to get down to 0. Then I had to get monthly blood draws for 6 months. As long as the hCG levels did not rise, we would be cleared to get off birth control and try again. This molar pregnancy was extremely hard on me. I was emotionally devastated to learn that I had lost the pregnancy, then I felt isolated from the rarity of my diagnosis, and then there was a chance I may need chemotherapy! It’s an incredible amount of emotions I was forced to bear. On top of all that, I wasn’t able to try again right away, I had to be monitored weekly and then monthly which made it impossible to move forward with my grief. Every blood draw was a constant reminder of my loss. 

I was lucky enough that my hCG levels never rose and I was cleared by my OB to get off birth control in March of 2022. My first cycle in April, we fell pregnant, but it sadly ended in a chemical pregnancy. We are still trying and are hopeful for a double rainbow baby. 

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Miscarriage

Toni’s Story

Kingston

Nothing can prepare you for these words: “I’m sorry, but your baby doesn’t have a heartbeat”.

In January 2021, we announced our pregnancy to the world via social media. We found out in December that we would have another addition to our incredible family. We were shocked, excited, amazed and so happy. We went to an 8 week ultrasound and saw the most adorable little baby with a PERFECT heartbeat. It made all of the doubts disappear and bring everything into reality. Our children were so excited, especially my son, Elijah. He prayed for over two years that we would have a baby boy. The past two Christmases he has put “baby brother” on his Christmas list.

Needless to say, this was going to be the best Christmas gift EVER! On February 8th we went to get our second ultrasound. This time the baby would be quite a big bigger, 12 weeks and 3 days to be exact. It was finally our turn to go back into the room to see our precious gift! We all got settled and the room was full of excitement and anticipation. I held a small screen in my hand and my baby girl was laying next to me, while the other two kiddos were sitting with their daddy watching on the TV. She began to show us our baby, the baby was PERFECT. All three kiddos were so excited. The smiles were big and hearts were full. Then I heard the words that no one ever wants to hear, “I am sorry, but your baby doesn’t have a heartbeat.” My heart sank, I immediately felt like time was frozen and my world stopped spinning. Her words replay in my head over and over, even to this day.

Ryon came over to comfort me, The kids were all crying and confused. We prayed as a family and then began to walk the hardest road I’ve ever had to walk.

I carried our sweet baby for almost a month after finding out I wouldn’t get to meet them this side of Heaven.  On March 3, 2021 I had a D&C. It was the most excruciating decision I’ve ever had to make. I left the hospital empty handed, but I know that he/she is in the arms of Jesus and that one day I’ll get to meet my 4th amazing child.

Our hearts are grieving but we want you all to know that God is still good. He’s never changed during this whole process. He is a loving father and he’s close to the broken hearted.

We appreciate your prayers as we move forward toward healing and restoration.

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Miscarriage

Reese’s Story

Feijãozinho

In March of this year, we finally received the gift we have been waiting on so long. Positive pregnancy tests! I cannot begin to tell you the immense joy emanating from simply seeing two lines on the pregnancy test. For the last few years, I was riddled with anxiety and sadness from just getting negative results, but now it was finally happening. 

We first saw our baby “Feijãozinho” in our 7 week scan on the 29th of March. A wee little baby. A tiny blip in my tummy. Our reality was unfolding beautifully and our love grew more and more for this wonderous miracle. We had another scan in our 8th week and we heard Feijãozinho’s heart beating for the first time. I have heard heart beats constantly in my nursing career but trust me when I say that it was the most beautiful heart rhythm I have ever heard: strong and promising. My husband woke me up in the mornings by nuzzling my stomach, I fell asleep to him talking to Feijãozinho. We started planning for the future that had been our heart’s desire for the longest time: a future where I am Mamãe, João is Papai, and we have our baby Feijãozinho. Our weekends were filled with going to baby fairs, going to maternity shops and choosing car seats and buggies. Every waking moment revolved around our child. Our love, hopes and dreams have all been placed in a baby-shaped basket.

We went around in a baby haze, continuing our daily routines but very mindful of the precious cargo we were carrying. I received my first appointment at the Coombe for May 6th. I left work on May 5th wishing my colleagues a lovely weekend and telling them excitedly we’re seeing the baby the next day for our 12 week scan.

We had no clue as to how our reality would change the day after. The morning of the scan, I was sending my friends and family photos of my baby bump. I went in the Coombe, got through my booking appointment, had my bloods taken, then rang my husband to meet me in the Maternity scanning department. I remember feeling irate as all the ladies who arrived after me got called in first. It might have been the Universe’s way to try to spare us from the pain a few minutes longer.

We went in and did our routine checks. The sonographer located the baby but fell into a deep silence. After a few seconds, she ran the color flow.

It was after that she said the words which broke my husband and I: “I am sorry but your baby has no heartbeat..”

I had to wait a week to get another scan done and I am not going to lie, there was this little voice of hope in the back of my mind wishing for a different outcome. Doctor Alex and rANP Sinead unfortunately confirmed what we already knew. I was then faced with a decision whether to wait for my body to expel the fetus naturally, take medication that will induce labor, or go for surgery. I went for the latter.


Today marks the day that our angel baby was physically separated from my body. There is a feeling of finality around the whole experience and a lingering wistfulness around the loss but my heart remains hopeful. Before I went into the hospital, I whispered to our angel baby to look after me. Feijãozinho sent nurse Joanne in St Gerard’s Ward, nurse Rita and Kuya Alfred who held my hand in the OR until I went under. I woke up to my kind and empathetic nurse, Patience, in the recovery room. Feijãozinho pulled through and looked after his Mãe and I know our baby will always be with us and that he’s being minded by his Lolo Ato & great grandma Mayet.

I look at my husband and who has been rock through this whole ordeal who never fails to give me as much affection as I want with a smile on his face. I know that my broken heart mirrors his but he has bravely put his own needs over mine and has been looking after me like a trooper. I couldn’t have picked better husband and my love grows for him deeper from all the challenges we have been through.

Our baby has gone to heaven now but we will forever be his parents. We cannot wait for the day that we get to meet again, but until that happens, we pray for the strength to carry us through every day while hoping and praying for a healthy Earth-side baby.

This is our story that I am sharing to the world as no parents should suffer the loss of their child in silence. I am 1 in 4 & I am 1 in 8.

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